News from lab results

The blood test results on Katy are now in and she will be taking Imuran. I just got a call from the doctor’s office and they are calling in the order right now. This is another major step toward a possible remission. The nurse who called to tell us the news used the word remission relating it to others who have had to take both Remicade and Imuran for relief of symptoms. The results could be what we have been longing to see for Katy. For those of you who have studied the book of Daniel and the story of the fiery furnace, you’ll know what this means, “But if not….”

Comments:

1. Doris Harriff Says:
   July 31st, 2007 at 5:46 pm e

   Praying that this will be the answer for Katy.

   Aunt Doris

2. Sandy Says:
   July 31st, 2007 at 6:00 pm e

   I’m so glad to hear that there is another drug option that Katy will able to try. I pray that things go well and that this helps pull Katy out of the cycle of symptoms she’s been experiencing.

   Sandy

3. Jennifer Blugerman Says:
   July 31st, 2007 at 7:43 pm e

   Hope does not fail. We pray this will be the beginning of brighter days ahead!

   -Jennifer

4. Patricia Says:
   July 31st, 2007 at 9:52 pm e

   Hope springs eternal in the believer’s heart. We pray that this combination will be the answer … that Katy will be able to tolerate both of them … and thrive.

   What is happening regarding Qavah?

   Patricia

5. Jennifer S. :-) Says:
   August 1st, 2007 at 12:01 am e

   Katy,
   I pray that the doctors will finally find the right balance of drugs to help you deal with the HPS. Praise God for their determination to help you!!
   Love and prayers,
   Jen

Week Six

Katy was told her recuperation time would be six weeks after surgery. She is in the sixth week and she has needed them all. There are times she has wanted to get out but when we did go out she would have a difficult time and felt like the outing wasn’t worth it because of the physical toll it took on her body. As she comes to the end of her imposed rest, she has been feeling more like getting back to her school work. Today she actually got out her Constitutional Law book and started looking over her course requirements again. I want to pray her through this one big goal; to finish school!

She has been dealing with a sinus headache all day, so her doctor is thinking a CT scan could show whether infection is at the root of her headaches and eye strain problems. That will be later in the week. We want to ask for continued prayer for her doctors. They are dealing with a relatively unknown syndrome and often question why Katy’s tests show “normal” readings but her body is not functioning normally. We question the same thing, yet in all we have seen Katy go through this past year, it is obvious to us that her platelet dysfunction is causing other problems on the cellular level that human minds and the latest technology have not yet discovered. We may never have those answers this side of heaven, but we are praying that at least one of her doctors will keep seeking.

For the patient who is diagnosed with an unusual disease or disorder, there is a learning period that has to take place. They have to learn to live differently. Katy has had to change her diet, her routine, and personal preferences, in order to accommodate her syndrome. Her future is as certain as yours and mine. She will not live to see all of her dreams come true. Neither will you and I. The scriptures are clear that we will all die one day. Whether she believes her doctors will eventually figure things out, or whether she has a better life after Immuran isn’t really her focus. She has steadfastly held on to the hope that if the Lord calls her home right now, she is ready. She is ready to face Him with joy and gladness. She believes the promises of His word; that there is life after this life. She believes that there is a home for her in heaven and that there is there is a Savior, Christ the Lord. Her salvation from an eternal hell and death were won for her on a hill called Calvary. Her hope transcends the struggles of this life.

Comments:

1. Karen Tillman Says:
   July 30th, 2007 at 10:05 pm e

   Hey Dawn,
   You are correct, that we all will one day die. God also doesn’t promise us tomorrow. However, I would like to think that just because Katy and I have a disease where most people die in their 30’s or 40’s, that we are living in a time where modern medicine will help us find if not a cure a better quality of life. It is very interesting to note that with HPS there are some people who are in their 60’s, and Lord willing that is the category, even with all my medical issues I hope to one day be in. The struggle with this disease is hard and often times long and draining, but it is my hope that people will see us fight the good fight, and marvel at our long standing faith in our Saviour Jesus Christ.
   Much love
   Karen Tillman

2. Jennifer S. :-) Says:
   July 30th, 2007 at 11:35 pm e

   Praise God for that transcendence! I think sometimes we downplay the role that hope plays in our daily lives. Can you imagine living without it? You couldn’t truly live. I praise God for the hope I see in Katy.
   Love and prayers,
   Jen

3. Jes Says:
   July 31st, 2007 at 6:44 am e

   Dawn -
   I am praising God this morning that he has given this eternal perspective to Katy…It’s no small thing when we live in a age where everyone wants to live for the moment. I am so thankful that she can rest in that security - knowing that her Lord loves her so much that he sent his ONLY son. When I look at my children, lying peacefully in bed after a long day of romping in the sun and playing in the sandbox…their hair still damp from the evening bath - I marvel at how much God must love us to send that precious son….

   We love ya’ll - thank you for the reminder to keep a heavenly focus as we do even the mundane things!

   Jess

4. Doris Harriff Says:
   July 31st, 2007 at 3:10 pm e

   I have been going through a bunch of old hymnals just to see what I have - lots of stuff I haven’t heard or even thought of in ages. One I took particular notice of - “When I Get to the End of the Way.” I thought that the second verse is so apropos of Katy’s life in the past year:

   There are so many hills to climb upward
   I often am longing for rest;
   But He who appoints me my pathway,
   Knows just what is needful and best.
   I know in His Word He hath promised
   That my strength “it shall be as my day;”
   And the toils of the road will seem nothing,
   When I get to the end of the way;
   And the toils of the road will seem nothing,
   When I get to the end of the way.

   Aunt Doris

5. Heather Kirkwood Says:
   July 31st, 2007 at 9:18 pm e

   Way to go Katy!!!! I was so tickled to hear you broke out the text book today. It put a big smile on my face. Good luck with the new med. Keep marching forward!

Sabbath Day rest

We are resting today. Katy and I studied more about Daniel today and had a good prayer time together. There are so many things to pray about these days. Many families are touched by hardships of one sort or another. It was wonderful to have a long quiet time of prayer and lay the needs of friends and family in the hands of the One Who knows what to do.

During the night Katy needed more steroids and potassium. She started complaining about her face hurting. I had just read this week that one of the side effects of Remicade is chronic sinus infections. Because that information was available to me I recognized the signs and started Katy back on the medication she had in the house from her last infection. This will be a matter of prayer since the continued use of antibiotics can be problematic in the future. I plan to start praying ahead!

Several cards started arriving this week and it has been fun to walk in her bedroom with a handful of greeting cards. She has enjoyed the stories of the things happening around your home. The story of a critter eating half of Oma’s tomato made her laugh, and many of your stories touch her heart. Thank you all for the many times she has needed a lift and you left a comment or wrote a note of encouragement. Someday she will be able to express what it means to her.

Comments:

1. Jennifer S. :-) Says:
   July 29th, 2007 at 10:18 pm e

   Katy,
   I’m glad to hear that you were able to rest today, physically and spiritually. I pray that you will have peaceful sleep tonight.
   Love and prayers,
   Jen

A Declaration

I declare there is nothing like an entire night of sleep! Last night, by God’s grace, we had one. No pain meds today made the day even better. Praise God and Happy Sabbath day.

Comment:

1. Laura Griffith Says:
   July 28th, 2007 at 9:12 pm e

   How exciting to hear the good news

A Joy Day

Today was the day we have all been praying for. There were no pain medications given today. All symptoms of the overdose subsided and Katy ate a good meal at lunch and dinner. She smiled easily, and shared the day with a friend. The girls talked of decorating, movies, the books they were reading, and the things God was teaching them. All the normal things. The wonderful things that we all do everyday without even thinking.

Watching Katy sit up and enjoy the company of others is such an uplifting thing for our family. We have seen her struggle through so many hardships that just having her join us for a meal is special. Today was a day we had been longing for and we want to thank all of you for the fervent prayers you have prayed on her behalf.

Your comments on the last post filled our souls right up to the top and overflowing. Thank you for the scripture and quotes that help us stay focused on the One Who leads us beside the still waters; the One Who calms our fears.

Comments:

1. Karen Tillman Says:
   July 27th, 2007 at 11:26 pm e

   Hey Katy,

   I am so thankful you got to really enjoy the day. And Dawn I know that it really blessed your soul to see Katy having fun. I pray that there will be more days like today.
   Love
   Karen Tillman

2. Lillian Oliveira Says:
   July 28th, 2007 at 12:16 am e

   What a blessed relief! Praise God from Whom all blessings flow! Love, Aunt Lil

3. Jes Says:
   July 28th, 2007 at 1:02 pm e

   Hey guys!
   It’s been a while since I posted but I have been reading and praying for Katy daily! I just wanted to let you know that I’m so happy about this good day - I know it’s been a long time in coming and it’s such a blessing! The Lord has sustained you and carried you and given you so much grace to accept some of the mistakes - you are a walking testimony of His faithfulness!

   To give you a quick update on our news - we have a new addition to our family as of Monday! Our little guy made a big entrance - we just barely made it to the hospital - he was born 9 minutes after we parked the car and got into a room! Needless to say - it was quite an adventure! He’s a very sweet baby - he eats well and sleeps like a champ! We are totally enjoying him! I would love to bring him by to ‘visit’ and tell you the whole fun story - It’s a story of God’s perfect timing - which I know you will love. If you are having a good day on Monday - I have a sitter for the other two kids and the baby and I could make a trip over! Just let me know if that would work!

   We love ya’ll so much!
   Jess

4. Doris Harriff Says:
   July 28th, 2007 at 1:18 pm e

   I have to echo what Lily said - What a blessed relief! All praise be to God!

   Aunt Doris

5. Jennifer S. :-) Says:
   July 28th, 2007 at 4:16 pm e

   Praise God for sweet relief!! I’m so glad to hear that you have had some respite from the rollercoaster. I’ll pray that it continues. He is faithful!!
   Love and prayers,
   Jen

Things brought to light

Katy is improving. It was such a long night! She was not keeping anything down and every two hours I gave her pain meds to keep her abdomen from spasms. I prayed most of the night for the mercies of God. He was silent. By morning I called her GI doctor. He ordered tests for liver and pancreas functions to be drawn early this morning. When the nurse called this afternoon to say the tests came back all in the normal range I mentioned that Katy had been put on hormone replacement last week. That started a whole new conversation. With some encouragement from a wise friend, I called the pharmacy in charge of the compounding formula to help balance Katy’s body after her hysterectomy. When the pharmacist looked up the prescription based on what I told him, he discovered that the doctor had not written an appropriate dose for Katy. She was given far and above the amount of estrogen she needed and her body was going crazy. The pharmacist told me not to use any more of the cream until I got back with the doctor. Over the next day or two, Katy will begin to feel much better according to the pharmacist.

I have prayed a simple prayer for as long as I have had children. “Lord, bring the hidden things out of the darkness into the light.” The Lord has been faithful to show me those things in order to bring light and life to many circumstances we have faced as a family. I prayed last night that the hidden problem with Katy’s body would be brought to light and throughout the day today, answers began to come until the revelation I had prayed for last night brought light. God was silently working!

Katy is rejoicing that her nausea and headache will soon be gone. She has completely let go and forgiven the mistake. These things happen. Doctors are human. We are looking forward to tomorrow and the hope that when she wakes up, Katy will be able to have the joyful day that she has been waiting for.

* The doctor prescribing the compound is not one you have read about on this blog. But do pray for those who choose medicine for a career. They all need wisdom as they care for us no matter what our ailments might be!

Comments:

1. Lillian Oliveira Says:
   July 26th, 2007 at 8:26 pm e

   Just read this, after I sent the last note. Good job! Dawn. Katy, I hope you enjoy the “Zaire Mountain” story I sent. I look forward to hearing great news for tomorrow. Much love, Aunt Lil

2. Patricia Says:
   July 26th, 2007 at 9:38 pm e

   Wow! What a relief …. and a load off your minds, to have been able to trace the problem!

   May each and every one of you get a good, restorative night’s sleep tonight!!

   Patricia

3. Jennifer S. :-) Says:
   July 26th, 2007 at 9:41 pm e

   Praise God for relief and answers! I’m thankful to hear this good report. Keep your chin up Katy!!
   Love and prayers,
   Jen

4. Lita Long Says:
   July 27th, 2007 at 6:57 am e

   It always overwhelms me when I think of the Lord and how wonderfully He has made our bodies. Despite Katy’s daily physical set-backs, her body will still act in a normally abnormal way to indicate all of the signs of an extreme dosed prescription! Just those 2 symptoms were enough to send a “red flag”. Katy, although the Spirit moves in an unhurried way, God gives you enough grace to go from strength to strength. I pray that your journey from strength to strength will become less of a distance. Hope you feel better today!

   Love, Miss Lita

5. Jennifer Blugerman Says:
   July 27th, 2007 at 9:10 am e

   I am reading the book, “Smooth Stones Taken from Ancient Brooks,” collected sayings of Thomas Brooks compiled by C.H. Spurgeon. Brooks was a 17th century preacher. Of him, Spurgeon says, “Genius is always marvelous; but when sanctified it is matchless.” Below is a beautiful quote I thought you might enjoy:

   “The choicest buildings have the lowest foundations; the best balsam sinks to the bottom; those ears of corn and boughs of trees that are most filled and best laden, bow lowest; so do those souls that are most laden with the fruits of paradise.”

   May your day be full of grace and mercy. We continue to pray for you all.

   -Jennifer

6. Aleah Yunger Says:
   July 27th, 2007 at 12:20 pm e

   I read the Facebook Daily Verse today and just thought it was beautiful and filled with sobering truth: “The heart of man plans his way, but the Lord establishes his steps.” Proverbs 16:9. I know you, Katy, and your whole family has a way planned, but the Lord is establishing your steps — and you know He does it in love. Praying for you still today, that you feel God’s love and guidance even while in pain. ~Aleah

   PS What testimony to your doctor to accept his mistake with grace! That will not go unnoticed, I’m sure.

7. Martha Harrison Says:
   July 27th, 2007 at 12:44 pm e

   Praise God for His faithfulness! I’m so thankful for signs of improvement in Katy’s body after the revelation came to light regarding overdose of hormones. Prayers are being answered, and hopefully Katy will soon feel well enough to enjoy a good meal, as well as having a joyful time with friends and family! Love in Him, Martha

Wednesday night

It was a difficult night trying to keep potassium levels and everything in balance. When morning came, Katy said she wanted to go to the doctor so I called the endocrinologist and asked for an appointment. When we got there we waited for a long time to see him. Then when the doctor looked at her, he called for an ambulance! So we went to the hospital and spent the day getting her stabilized. We were faced with a decision after all her tests returned at the end of the day. Do we leave her when everything is back to normal or do we take her home and hope for a better night. We decided to bring her home and that is where we are tonight. Please pray that whatever is wrong will be discovered. For now, we are home, praying, and staying calm. That is where we all want to be.

Comments:

1. Jennifer Blugerman Says:
   July 25th, 2007 at 7:43 pm e

   We are so sorry that, once again, the rollercoaster seems to be presenting you with another twist that you didn’t see coming. We’re glad you’re home tonight and will be praying that the night is uneventful and restful and, as you said, that whatever is wrong will be quickly discovered and remedied!!!

   Blessings to you all in Christ,
   -David & Jennifer

2. andrea Says:
   July 25th, 2007 at 7:52 pm e

   My prayers are with you all in this AGAIN difficult time! But our Lord is watching over you and he will rescue Katy as He always does. Stay strong in your faith as you always have!!!!

   Love and Blessings
   Andrea

3. Karen Tillman Says:
   July 25th, 2007 at 7:58 pm e

   Katy, I don’t know what to say. Except that I am asking God to wrap his arms around you, and tht he give you comfort and peace yet again. Dawn, I want to thank you for being so faithful to keep Katy’s blog updated, and the same prayers go for you too!!
   Love in Him
   Karen Tillman

4. Lillian Oliveira Says:
   July 25th, 2007 at 8:11 pm e

   Lord Jesus, You have promised to give Katy “a future and a hope - that You have “plans for good and not for evil” for her. The night is pretty dark tonight, Father, one mystery upon another, pain and suffering, sleepless nights. Thank for Doctors, for hospitals that help, and for the haven of home and family. Show them Your Stars of Hope in this dark night. We ask, Father, in Jesus Name, to restore the function of her adrenal glands - it will take a miracle from Your hand, and bring to light the reason for this last piece of misery. Use her patient suffering for the honor of Your Holy Name and for Your Holy purposes. Do not waste ANY of Katy’s suffering, Father, but use it to bring encouragement and hope and the ability to endure to others. I ask it in Jesus’ Name.

   Love from Aunt Lil

5. Aleah Yunger Says:
   July 26th, 2007 at 7:17 am e

   Our Father has brought you miracles of wisdom before (those hunches or skilled doctors that land right on your doorstep). Today, I pray for another of those miracles. He has plans higher than any of us who know of your story can imagine. He has promised, like Lil said, plans for good and not for evil — and though you suffer, I pray that you can still rejoice in your heart that your Savior is walking with you and that ultimately, you are walking the path to His glory. Stay strong today, Katy — keep your mind and heart focused on the Lord and use His strength to keep from getting discouraged. There is a purpose and an end in all of this that goes beyond any of us here on earth, and in times like these, it is the only thing we can cling to that will allow us to “keep on keepin’ on.” Praying for miracles of wisdom and endurance for you today! In Christ, Aleah

6. Barbara Walker Says:
   July 26th, 2007 at 8:26 am e

   The nights are certainly scary and intimadating when you or someone is ill and you’re not sure what to do. I believe there are a lot of us called upon by the Lord to pray for you and your family during these nights. Dawn, your instincts have been so on track - we all know that the Lord is your Shepherd during this tumultous time. I pray for the wisdom of doctors and the peace that passes all understanding for all of you.

   Love in Christ,

   Barbara

7. Jennifer S. :-) Says:
   July 26th, 2007 at 9:00 am e

   Katy,
   I know it must be disheartening to be back on the shadowy side of this mountain, but God will bring you into the sunshine again. I’m relearning (again) what it means to trust in Him totally and completely as one of my dear friends has left for Iraq for a year. I know that it’s difficult when we don’t know what God’s reasons are for circumstances, but His grace is sufficient. I pray that it will be abundantly sufficient for you and your family!
   Love and prayers,
   Jen

8. Doris Harriff Says:
   July 26th, 2007 at 9:25 am e

   When I was reading the Bible for my morning devotions, I came across a verse that immediately made me think of Katy:
   Psalm 71:20 - Thou, which hast showed me great and sore troubles, shalt quicken me again, and shalt bring me up again from the depths of the earth.

9. Sandy Says:
   July 26th, 2007 at 10:30 am e

   I’m sorry that things are still such a rollercoaster for Katy this week. Getting everything in balance when there are so many different things going on in her body must be so challenging. I hope today has been a better day. Prayers continue from here!

10. Martha Harrison Says:
    July 26th, 2007 at 12:34 pm e

    Sometimes there seems to be more darkness right before the dawn! Dear God, we want to see the light of morning in this suffering Katy has been going through. We know your ways are not our ways, and You love Katy more than even her family and friends. We know you wouldn’t let her suffer for naught, but how long Lord, how long? Please bring healing to her body very soon…..give Katy and her family peace. Their faith and trust is in You, Father, our Great Physician. In Jesus’ name, AMEN.

    Katy, many prayers are being prayed for you. Your name has been added to our church prayer list.
    Love, Martha

11. Heather Kirkwood Says:
    July 26th, 2007 at 12:49 pm e

    Hey Katy,
    Praying for you here - so sorry things are once again wonky, but I hope the docs are getting to the bottom of it. What a year it has been. Hang in there girl!

12. Candice & Crystal Sipe Says:
    July 26th, 2007 at 5:31 pm e

    Dear Katy, We have missed talking to you online. We are hoping and praying that today was a better day and that your endocrinologist can provide you with some answers. How frusterating I am sure this is for all of you. You are an example to all of us on how you never give up. It is encouraging to know there are people all around the US praying you through. Hopefully, this next year will be a better year for you all. Love, Candice & Crystal

Wednesday night

It was a difficult night trying to keep potassium levels and everything in balance. When morning came, Katy said she wanted to go to the doctor so I called the endocrinologist and asked for an appointment. When we got there we waited for a long time to see him. Then when the doctor looked at her, he called for an ambulance! So we went to the hospital and spent the day getting her stabilized. We were faced with a decision after all her tests returned at the end of the day. Do we leave her when everything is back to normal or do we take her home and hope for a better night. We decided to bring her home and that is where we are tonight. Please pray that whatever is wrong will be discovered. For now, we are home, praying, and staying calm. That is where we all want to be.

Comments:

1. Jennifer Blugerman Says:
   July 25th, 2007 at 7:43 pm e

   We are so sorry that, once again, the rollercoaster seems to be presenting you with another twist that you didn’t see coming. We’re glad you’re home tonight and will be praying that the night is uneventful and restful and, as you said, that whatever is wrong will be quickly discovered and remedied!!!

   Blessings to you all in Christ,
   -David & Jennifer

2. andrea Says:
   July 25th, 2007 at 7:52 pm e

   My prayers are with you all in this AGAIN difficult time! But our Lord is watching over you and he will rescue Katy as He always does. Stay strong in your faith as you always have!!!!

   Love and Blessings
   Andrea

3. Karen Tillman Says:
   July 25th, 2007 at 7:58 pm e

   Katy, I don’t know what to say. Except that I am asking God to wrap his arms around you, and tht he give you comfort and peace yet again. Dawn, I want to thank you for being so faithful to keep Katy’s blog updated, and the same prayers go for you too!!
   Love in Him
   Karen Tillman

4. Lillian Oliveira Says:
   July 25th, 2007 at 8:11 pm e

   Lord Jesus, You have promised to give Katy “a future and a hope - that You have “plans for good and not for evil” for her. The night is pretty dark tonight, Father, one mystery upon another, pain and suffering, sleepless nights. Thank for Doctors, for hospitals that help, and for the haven of home and family. Show them Your Stars of Hope in this dark night. We ask, Father, in Jesus Name, to restore the function of her adrenal glands - it will take a miracle from Your hand, and bring to light the reason for this last piece of misery. Use her patient suffering for the honor of Your Holy Name and for Your Holy purposes. Do not waste ANY of Katy’s suffering, Father, but use it to bring encouragement and hope and the ability to endure to others. I ask it in Jesus’ Name.

   Love from Aunt Lil

5. Aleah Yunger Says:
   July 26th, 2007 at 7:17 am e

   Our Father has brought you miracles of wisdom before (those hunches or skilled doctors that land right on your doorstep). Today, I pray for another of those miracles. He has plans higher than any of us who know of your story can imagine. He has promised, like Lil said, plans for good and not for evil — and though you suffer, I pray that you can still rejoice in your heart that your Savior is walking with you and that ultimately, you are walking the path to His glory. Stay strong today, Katy — keep your mind and heart focused on the Lord and use His strength to keep from getting discouraged. There is a purpose and an end in all of this that goes beyond any of us here on earth, and in times like these, it is the only thing we can cling to that will allow us to “keep on keepin’ on.” Praying for miracles of wisdom and endurance for you today! In Christ, Aleah

6. Barbara Walker Says:
   July 26th, 2007 at 8:26 am e

   The nights are certainly scary and intimadating when you or someone is ill and you’re not sure what to do. I believe there are a lot of us called upon by the Lord to pray for you and your family during these nights. Dawn, your instincts have been so on track - we all know that the Lord is your Shepherd during this tumultous time. I pray for the wisdom of doctors and the peace that passes all understanding for all of you.

   Love in Christ,

   Barbara

7. Jennifer S. :-) Says:
   July 26th, 2007 at 9:00 am e

   Katy,
   I know it must be disheartening to be back on the shadowy side of this mountain, but God will bring you into the sunshine again. I’m relearning (again) what it means to trust in Him totally and completely as one of my dear friends has left for Iraq for a year. I know that it’s difficult when we don’t know what God’s reasons are for circumstances, but His grace is sufficient. I pray that it will be abundantly sufficient for you and your family!
   Love and prayers,
   Jen

8. Doris Harriff Says:
   July 26th, 2007 at 9:25 am e

   When I was reading the Bible for my morning devotions, I came across a verse that immediately made me think of Katy:
   Psalm 71:20 - Thou, which hast showed me great and sore troubles, shalt quicken me again, and shalt bring me up again from the depths of the earth.

9. Sandy Says:
   July 26th, 2007 at 10:30 am e

   I’m sorry that things are still such a rollercoaster for Katy this week. Getting everything in balance when there are so many different things going on in her body must be so challenging. I hope today has been a better day. Prayers continue from here!

10. Martha Harrison Says:
    July 26th, 2007 at 12:34 pm e

    Sometimes there seems to be more darkness right before the dawn! Dear God, we want to see the light of morning in this suffering Katy has been going through. We know your ways are not our ways, and You love Katy more than even her family and friends. We know you wouldn’t let her suffer for naught, but how long Lord, how long? Please bring healing to her body very soon…..give Katy and her family peace. Their faith and trust is in You, Father, our Great Physician. In Jesus’ name, AMEN.

    Katy, many prayers are being prayed for you. Your name has been added to our church prayer list.
    Love, Martha

11. Heather Kirkwood Says:
    July 26th, 2007 at 12:49 pm e

    Hey Katy,
    Praying for you here - so sorry things are once again wonky, but I hope the docs are getting to the bottom of it. What a year it has been. Hang in there girl!

12. Candice & Crystal Sipe Says:
    July 26th, 2007 at 5:31 pm e

    Dear Katy, We have missed talking to you online. We are hoping and praying that today was a better day and that your endocrinologist can provide you with some answers. How frusterating I am sure this is for all of you. You are an example to all of us on how you never give up. It is encouraging to know there are people all around the US praying you through. Hopefully, this next year will be a better year for you all. Love, Candice & Crystal

Another Test

This morning we got up and headed to the GI doctor to have Katy’s blood tested for compatibility with Immuran. If the test shows it can be given, we will proceed. There are risks involved but we’ve tried everything else and nothing else is allowing Katy to live her life. She will remain on Remicade, but it has not worked as well as we expected. After we returned home today her spasms and breathing problems started, so I have given her more prednisone and potassium as needed.

It has been a long time since she has had a normal day. I’m praying for a couple of them to give her a spark of joy. Your cards and notes are helping so much. She really enjoys hearing from you and the things that are happening in your world. If there is anything of interest, please don’t hesitate to write. Thank you Lord for the hard days. They make the easy ones so much sweeter to us.” Amen

Comments:

1. Patricia Says:
   July 24th, 2007 at 3:46 pm e

   I just wish we could give each of you a big bear hug … I think you need it badly.
   Take a deep breath and then a nap …. in His everlasting arms.
   Love you guys!
   Patricia

2. Karen Tillman Says:
   July 24th, 2007 at 4:54 pm e

   Hey Dawn,
   I am really not surprised about having to try another drug. This Crohn’s thing and HPS is one of the hardest situations to deal with get, and keep under control. Most patients that I know who are on Remicade take several other drugs in combination. I am just glad that Katy can tolerate the Remicade. I sure wish I could have. Please let Katy know our thoughts and prayers are with her always.
   Love
   Karen Tillman

3. Jennifer Blugerman Says:
   July 24th, 2007 at 8:13 pm e

   Katy and Dawn,
   It was nice to see you today, even briefly! The kids and I really enjoyed watching little Analise! She is a cutie and is so good! Matt set up baby blankets on the floor for her to play on and we got out my stash of baby toys that I reserve for such occasions. Analise was thrilled at the “new” toys and played with great enthusiasm. Matt was reclining on the floor next to her and at one point Analise let out this huge, happy screech of joy. Matt’s eyes got really big. He looked at me, smiled, and with perfect comedic timing said, “Uh, I think I need some earmuffs!” Emma and I laughed so hard!

   We are praying for some sense of “normalcy” to reappear so that you can all enjoy the anticipation and preparations for little Qavah! But how blessed she will feel to be in a home where medical issues are not an unexpected bother, but a normal part of life to be dealt with one step at a time with total reliance upon the Savior and joy in all circumstances!

   In His grip,
   -Jennifer

4. Lillian Oliveira Says:
   July 24th, 2007 at 8:56 pm e

   Katy, I have a huge powder pink hydrangea in a tall square silver vase on my kitchen table. Its from a “volunteer” bush that grew down over the back bank where Uncle Tony threw cuttings from a bright blue hydrangea! I wish I could send it to you, it just makes one marvel at the beauty God makes - and then gives us eyes to perceive glorious colors, and an esthetic sense to be able to appreciate them… some of our “made in His image” traits. And I’m sending you tonight, a big warm, fuzzy, powder pink teddy bear hug to go along with the hydrangea. May Jesus give you a restful night. Love, Aunt Lil

Life Marches On!

The early morning ride to the hospital was beautiful today. I woke up to a rainbow arching high above the tree line in the west. The trees were bright and washed clean by the rain and everything was fresh and summery. Katy sat beside me in the car not saying much except, “I’m hungry!” She had to fast for twelve hours before the blood labs were drawn today. I had her morning medications in my purse and a plan to take her to the hospital cafeteria for something to eat right afterwards. It went well. Katy did not need but one prednisone boost all day! My friend Donna came to help me keep my life under control this morning, and it made for a smooth morning! She told me that their family had been praying for Katy during the night. That humbles us to hear that. God certainly heard them and blessed them. Now we wait to hear from the Mayo Clinic.

Tomorrow there will be more tests to determine whether Katy can tolerate another immune suppressant. We are thankful for the technology and the fact that there are some other drug choices to try. We are so sure that we are doing the right thing by continuing to press on for more help. Actually Paul and I feel that we are being led by God’s own hand to do more for Katy. Sometimes we wish for the cloud by day and the pillar of fire by night, though. Thank you for the many ways you continue to encourage us. Thank you, Lord, for giving me a reminder in the rainbow that you are always keeping your promises.

Comments:

1. Karen Tillman Says:
   July 23rd, 2007 at 10:48 pm e

   I will be praying for answers from the Mayo Clinic, and so I anxiously await the results. I hope they provide you with some clear answers and guidance for your next medical steps.
   Love
   Karen Tillman

2. Lillian Oliveira Says:
   July 23rd, 2007 at 11:44 pm e

   Rainbows and Promises… God’s promise in the rainbow was after Noah and his family had come through a long and fearsome trial - it brought the beginning of a new day - a new life - a fresh earth… May this be the beginning of just such good new things for you, Katy. I remember they sacrificed to the Lord about the time the promise was given… The Lord says in the Psalms “Sacrifice thank offerings to me, and call unpon me in the day of trouble. I will deliver you and you will honor me.” Day by day we see you offering thank offerings to Him, and He is honored, according to His Word. I know He delights in you, Katy, and in your family as you continue to faithfully surrender to what life brings, loving and trusting the Lord. It is a lesson to us all. “You will keep him in perfect peace, whose mind is fixed on You.” May you be kept in peace tonight. Love, Aunt Lil

Sunday

This weekend has been a series of surprises. Katy woke up in the early hours of Saturday morning with breathing problems again. Standing over her in a mental fog, I thought about the fact that I hadn’t discussed a plan with Katy’s doctors in the event she should go into another tailspin like she did last week. In the hospital they would quickly come and draw blood, make a decision about treatment, and hang a bag of steroids or potassium until she turned around. I prayed for wisdom and grabbed the bottle of steroids and decided to start with a small dose and hope for the best. I gave her 5mg. After half an hour I could see things turning in the right direction. Then muscle tightening began and I reached for the bottle of potassium and started with a low dose until I could see improvement. This has happened at regular intervals throughout the weekend. The greatest blessing for Katy and for us is being able to keep her at home while this is happening. This situation is no surprise to her Maker, and we are happy to rely on Him, although sometimes knowing what to do is just a hunch or a feeling. We are not able to leave her alone so one of us stays with her to be sure she gets what she needs before it becomes a crisis. I know this will change. Something about this whole thing seems temporary to me. Again it is just a feeling, but it is causing me to pray that way.

The bonus in all of this activity going on in Katy’s body is the time we get to spend with Katy in her room. She is surrounded by the colors and things that make her happy. It’s her own sanctuary. Her steadfast trust not only in the Lord but in us is very humbling. When her body becomes low on cortisol she looks as though she is sleeping but she is not able to ask for anything or communicate. When she is able to speak again she thanks us and tells us that she is always aware of everything happening but is relaxed knowing we are doing the right things. I wonder if I would be able to submit to that without fear?

Our specific prayer request for this week would be that Katy’s body would begin to function properly. Pray for her adrenal glands and endocrine problems to be put behind her so she can move on! She has so many dreams, and the faith that many of them will one day be a reality.

Comments:

1. Doris Harriff Says:
   July 22nd, 2007 at 6:58 pm e

   Praise God for parents who listen to the “hunches” and “feelings” that God gives them! Katy is constantly in my prayers.

2. Martha Harrison Says:
   July 22nd, 2007 at 9:17 pm e

   Bless you Dawn for keeping us posted on Katy. Thank you for letting us know your specific prayer request for her, as you are following the Lord’s prompting. This, in itself is encouraging and reassuring knowing that He is the Great Physician.
   Love and prayers, Martha

3. Jennifer S. :-) Says:
   July 23rd, 2007 at 8:55 am e

   Katy,
   I will be praying for a return to a more normal state of life. I’m thankful to hear that your parents are able to sense your needs and meet them–praise God!
   I pray your day is blessed.
   Love and prayers,
   Jen

4. Aleah Yunger Says:
   July 23rd, 2007 at 12:08 pm e

   God has not revealed all the mysteries to us — He never promised that. But He did promise to fight for us and to provide for our needs and to give us only what He has prepared us to handle. Praise Him for His goodness and mercy in that! He is providing for you and blessing you as a family through all this. I know you know that, but it’s worth mentioning again Praying for your adrenal glands and endocrine problems… let me tell ya, I’m not taking my body’s balance for granted anymore! Love in Christ, Aleah

Everything is Fine

We are resting today. Katy has been very good about pacing herself and has gotten a lot of rest. We’ll update more tomorrow. Thank you for visiting this site to check on her! God bless your Sabbath day with peace and rest.

Comments:

1. Jennifer Blugerman Says:
   July 21st, 2007 at 8:55 pm e

   Dawn, I enjoyed talking with you today! When we talk, it’s like I enter another dimention. I am transported away from my self-made, pathetic kingdom in which I all too often busy and worry myself with the things of the world, and I find myself on the other side of the wardrobe, so to speak. You are living in the trenches of the Great Battle, advancing daily on territory that Satan desires. The Lord is equipping you with spiritual ammunition and armor as needed, and always just in time! I feel like the rookie soldier just stumbling fresh onto the battlefield with my legs shaking in my clean boots. Your words, like a seasoned Seargeant, are helping me to feel more at ease and confident in the uncertainty of the fight. We will all be presented with hills to claim in the name of Christ. I pray that I will be able to advance as fearlessly as your family.

   In His grip,
   -Jennifer

Through Another Valley

I debated whether or not to take a picture of Katy early in the week. She was so sick. I tried to imagine her back on her feet and prayed for that. I know many of you did, too. I think it is good to remember where we’ve been, so that we can fully appreciate all our God does for us. Therefore, I am including pictures taken on a day that God was at work even if it didn’t look like it to my human eyes.

Our faith is strengthened through every valley Katy goes through. She is never alone at those times. Her faith and trust in her Savior is beautiful. Even when it seemed like things would never turn around, we had the promise in our hearts that God was going to see her through this. Her medical team is different now. Their approach has become much more intense. We watched them work diligently on her behalf and commit to her that they will continue to seek treatments that will help stabilize her system. Her blood work this coming Monday will be sent to the Mayo Clinic for further analysis. For now, we will keep careful watch over her if the signs of adrenal insufficiency recur. We know how blessed we are to be bringing her home today. When we walked in the door, Katy wanted most of all to see her room. She loves being home. Thank you for praying her home.

“For the eyes of the Lord are on the righteous and his ears are attentive to their prayer.” -1 Peter 3:12a

Comments:

1. andrea Says:
   July 20th, 2007 at 5:45 pm e

   What a beatiful post of showing your deep faith to us!
   I pray always for Katy and will continue to do so. I love you all

   Andrea

2. Tiffany Allen Says:
   July 20th, 2007 at 7:08 pm e

   Katy,

   I am so glad that you were able to go home today. How good that must feel!! You are in my prayers always.

   Tiffany

3. Sandy Says:
   July 20th, 2007 at 9:56 pm e

   I’m just catching up on all your news from this week. It sounds like such a hard week *hugs*, but I’m glad things have turned around again and I hope the weekend is wonderful! You’re in my thoughts and prayers.

4. Lillian Oliveira Says:
   July 20th, 2007 at 11:19 pm e

   Katy, may this mountain-top be a wide ridge that carries you on for many days improving every day - going ever forward and NOT around in circles as you’ve been doing - and as I did one memorable day in the Zaire mountains - that’s a story I must tell you some day! Your faith and forgivness and endurance are a lesson to us all and a “Light to our path”. May the Father of Glory bless you and give you sweet rest! Love, Aunt Lil

5. Jennifer S. :-) Says:
   July 20th, 2007 at 11:23 pm e

   There are few things as sweet to the tired body as one’s own home and bed. I praise God for providing a way for you to enjoy that, Katy!! I pray for God’s continued blessings upon you and your family.
   Love and prayers,
   Jen

6. Kristin Dunker Says:
   July 21st, 2007 at 7:57 am e

   I can see on your face in that last picture what you must be feeling: HOME!!! Woohoo!!! Don’t you just want to put your arms around your whole house sometimes?! I’m delighted to hear you’re doing better, we’ve been praying. Keep resting up (and scrapbooking!). We reworked our song yesterday, and are so looking forward to sharing it with others tonight. Hope you can be a part of it in the future…
   Love and a hug,
   ~Kristin

7. Angie Edwards Says:
   July 21st, 2007 at 8:51 am e

   Katy,

   We’ve never met, but we go to church with Colin and Jen. I have been reading all the entries on this site and am completely blown away every time by God’s goodness toward you and your family and the way you are walking in HIS way. Thank you SO much for sharing and allowing us to see His work in your lives. Take care and I will be praying for you. I hope some day soon to be able to meet you!

   God Bless!
   Angie

8. Karen Tillman Says:
   July 21st, 2007 at 2:54 pm e

   Katy,

   I am so glad that you have finally arrived home, as the saying goes, “There’s no place like home” I truly hope the docs can find some answers to the questions of all the issues you’ve been having. Take care and know that you are being prayed for daily.
   Love
   Karen Tillman

Hope Does Not Disappoint Us

Katy’s body didn’t really want to start making enough cortisol today. She got worse throughout the day and by 5:30 had a dose of liquid prednisone that turned everything around in an hour. It is amazing what can be done with the right combination and dosage of medication. The doctor monitoring her adrenal system will be running some tests tomorrow to see where her cortisol level is in the morning. If it is in a range that looks good, she may be able to come home. Her potassium levels were watched carefully today and she had to take it several times. We will also be coming home with a prescription for liquid potassium. That will be so helpful because it was hard for her to eat very many bananas and dried apricots in one day. Both are rich in potassium but are heavy in the stomach.

All of Katy’s doctors have seen her today. They all have a better understanding of what is happening to her body, although some things can not be fixed. It was nice to finally have a hospital stay when no one suggested this might all be in her head! Katy has endured a lot, and has extended a lot of forgiveness over the past year. I’m very proud of her for that.

On the home front I’ve had many offers of help, and the offers mean so much. I haven’t wanted to wear anyone out so I have not been very good about asking for help. After this last hospital stay I have come to see the need for help and will not turn it down. Katy has to be on strict bed rest for another two weeks. If you’d like to make that time more interesting for her, please feel free to send cards to our home. Finding out what is in the mail is a real high point of the day.

Katy and I studied about Daniel today. We fixed our minds on what it means to trust God to defend us. It is in Him we live and move and have our being. He has carried us through a very hard time. We have been blessed by His presence in our hospital room everyday. He is our hope. And hope does not disappoint us.

Comments:

1. Karen Tillman Says:
   July 19th, 2007 at 11:09 pm e

   Oh Dawn,
   I sure hope liquid potassium tastes better than it used too!!! It is just nasty stuff, I would highly suggest something to chase it with!! YUCK!!! I just feel so bad that Katy cannot take it some other way. Of couse IV is no fun either as it burns like the dickens!!! Just know that I am thinking and praying for strength for all of you, and that the Lord will give everyone the answers Katy needs to give her a longer period of recovery.
   Love in Him
   Karen Tillman

2. Bob and Amy Collins Says:
   July 20th, 2007 at 12:26 am e

   Praising God with you from Slovakia!!! You have been in my thoughts and prayers while we have been here because Bob let me know all that was going on.

   Emily and I are having a great time here. I just love the people. I am a little partial to the gypsies, as they are from Indian descent which you can tell just by looking at them. :0)

   Love to all,
   Amy and Emily from Slovakia

3. Lisa patterson Says:
   July 20th, 2007 at 10:53 am e

   Dawn & Katy,
   It is amazing how you studied about Daniel today, and found just the right thing to get you through the day. I was reading in Ester this morning, and was overwhelmed with the fact that all of the Jews faced death, and they could see no way out, until God intervined. How, we are like that, we feel there is no way and that things are hopeless, but we must always remember that God is in contrlol. We know that the things that seem overwhelming at this point in our lives will seem small with the next event God brings us. Remember when you thought Katy couldn’t get any worse with her foot pain, and now look what God is doing in her life. She is very amazing woman and God truely is working in her. I believe her ministry is with the doctors and nurses she comes in contact with. I am praying for blessings to be showered on you both.
   Love ya
   Lisa Patterson

4. Heather Kirkwood Says:
   July 20th, 2007 at 12:02 pm e

   I’m sure Katy will be happy to be home, and pray that she gets sprung soon! I was just talking to Sheena a while ago - she’s also in the hospital and it doesn’t look like she’s getting out soon. She’s also very ready to come home. My internet access at home is down, and the cable company can’t make a service call for a week!!! Ahhh…..so I have to check up from work.

   It seems whenever I really, really need a verse, God seems to somehow point one out that’s perfect.

5. Sheena King Says:
   July 20th, 2007 at 12:24 pm e

   Katy and Family:

   Just wanted to say that you are all in my prayers. Katy I too am in hospital and I hope you win the race to get home before me. I am having Crhon’s like issues which are being monitored daily by my docs.

   I pray you feel better soon. Big hugs from NL Canada

   Sheena

Cortisol

A new doctor came to the room this morning with another approach to the cortisol problem. He sent for labs and an order for Katy to be given cortisol rather than to wait for her body to produce it. The most amazing thing happened. An hour after the treatment, Katy said she felt stronger. She thought she could breathe without the BiPap machine and took off the mask. She sat up and said that while she was feeling strong she would like to take a shower! Can you imagine how surprised I was when she could barely pick her head up off the pillow earlier this morning? It was like watching dried up flowers come back to life after a good watering. But wait, it gets better! After a very long shower she said she would like to have a snack and ate something. I hardly knew how to behave. I started laughing and thanking the Lord, over and over again. After that she took a nap, woke up, ate a big lunch, and when I left the hospital she was playing a board game with her dad and winning! I could hardly wait to get to the computer to tell you!

I am having trouble with the post today and have lost my last two paragraphs. I’ll write again as soon as I get the chance. Thank you for your steadfast prayers. The Lord has heard us all.

Comments:

1. Sarah Meador Says:
   July 18th, 2007 at 3:53 pm e

   PRAISE GOD!!!

   Oh I have been reading along the past several days and praying for God our great physician to touch sweet Katy and to provide her relief and the the doctors answers that would help her. Praise God that He does hear and answer the prayers of His children.

   Continuing to pray for God’s powerful healing.
   Much love,
   Sarah

2. Trisha Ferris Says:
   July 18th, 2007 at 4:28 pm e

   Katy, Dawn & Paul,
   Remember, We’re all in this with you. Thanks for the latest post, though you were probably in need of a nap, Dawn. A part of me has relaxed a bit.
   Trisha

3. Patricia Says:
   July 18th, 2007 at 5:22 pm e

   Praise the Lord! Now get some much-needed rest … and enjoy Quavah’s birthday even more!
   Patricia

4. Jennifer S. :-) Says:
   July 18th, 2007 at 6:09 pm e

   Praise the Lord!! I hope you all get some rest during this reprieve. If ya’ll wouldn’t mind, please pray for me tomorrow–my dad is taking my cat to the vet to have her put to sleep. It’s kind of rough. I’d appreciate your prayers. I’m so glad to hear that Katy’s better though.
   Love and prayers,
   Jen

5. Connie Baker (Sweet Mondays RFBC) Says:
   July 18th, 2007 at 7:23 pm e

   It’s been a long while since I read from Katy’s Blog.
   My Mom and I have been catching up on all that’s gone on.
   I’m so thankful that things are looking better.
   I pray that this Doctor is able to help, that Johovah Rapha provides through this earthly physician all that is needed to care for Katy.
   Thank you for letting me share in approaching my Father on your behalf.
   I will visit again.

6. Jennifer Blugerman Says:
   July 18th, 2007 at 8:24 pm e

   Dawn, we are rejoicing with you! Praise God for sending dilligent doctors to your aid! We are praying that you all get a good nights sleep and have an even better day tomorrow!

   Love in Christ,
   -David and Jennifer

7. Jes Says:
   July 18th, 2007 at 8:46 pm e

   Hey guys!
   We are also rejoicing with you in this - hang in there - we know that God will continue to bring in the right people at exactly the right moment! We have seen Him do it for the past year!

   Tonight Noah was pretending to be Ellie - it’s so funny to watch! He had to have a leash and a dog house - it was quite an event!

   We love ya’ll!
   Jess

8. Karen Tillman Says:
   July 18th, 2007 at 9:28 pm e

   Dawn,

   this is GREAT news. I hope that she continues to make a remarkable improvement.
   Love always,
   Karen Tillman

9. Aleah Yunger Says:
   July 19th, 2007 at 7:02 am e

   Praise the Lord!! How faithful and gracious and merciful is our God.

10. April Lang Says:
    July 19th, 2007 at 8:12 am e

    Dear Katy,
    You are in my prayers! I am so glad that the cortisol treatment is working and that you were feeling well yesterday!!!

    Hope you had fun and won that game you were playing!
    Hope today is an even better day that yesterday!

    ~April

11. Heather Kirkwood Says:
    July 19th, 2007 at 9:59 am e

    Awesome news! I hope that means Katy will be home soon!

12. Doris Harriff Says:
    July 19th, 2007 at 10:23 am e

    I hope this is just an interim treatment, and Katy’s body will soon take over and do its job. On the other hand, supplying something that is a normal body secretion is certainly preferable to continuing with a drug.

    God bless!
    Aunt Doris

13. Colleen Knox Says:
    July 19th, 2007 at 1:19 pm e

    I’m so glad to hear the good news! Please remember that if you need anything (including someone to keep Katy company at the hospital) you can just give me a call!
    Love,
    Colleen

Prayer Request

It has been a trying day. The drugs used to help Katy’s cortisol level to rise are not working. For any doctors out there who want to know, her level was one for the past two days. She is needing a special touch from the Lord. He knows her body and how to flip the adrenal glands back on. The minds of man have not been able to do what He can do. Pray that her body will start producing cortisol.

Paul and I left the hospital a short time ago, and we are needing the rest of being at home. Thank you for your prayers.

Comments:

1. Karen Tillman Says:
   July 17th, 2007 at 10:47 pm e

   Hey Dawn,
   I pray the docs can get her back on track. Steroids are such a bummer, and can often lead to the strangest of complications. I know you are all hanging in there, and we are hoping Katy is well and back home again soon.
   Love always
   Karen Tillman

2. Jennifer S. :-) Says:
   July 17th, 2007 at 10:57 pm e

   Dear Campbell family,
   We are praying for Katy’s swift recovery and return back home. I can only imagine the discouragement that can come with another hospital stay, but cling to Jesus–He has Katy resting in the palm of His hand. May His grace be sufficient each and every day.
   Love and prayers,
   Jen

3. Patricia Says:
   July 18th, 2007 at 12:01 am e

   Rest and peace … and celebrate Qavah’s 4th birthday … and know that Katy is HIS, as are all of you.
   May The Great Physician grant HIS perfect wisdom to her doctors.
   Ib & Patricia

4. Jim & Lynda Says:
   July 18th, 2007 at 7:26 am e

   Dear Campbells,

   We join you in prayer for Katy’s improvement and inspiration for the doctors, that their efforts may soon bear fruit. We thank Jesus that He has you in the center of His hand, where nothing can harm you. May He strengthen Katy and you and provide blessed relief.

   Love,
   Jim & Lynda

5. Doris Harriff Says:
   July 18th, 2007 at 8:28 am e

   Paul and Dawn, my prayers are with you as well as with Katy. May God grant healing to her body and rest to yours.

   God bless!
   Aunt Doris

6. Joan Colwell Says:
   July 18th, 2007 at 8:46 am e

   We lift Katy and your precious family up to the Lord often in prayer here at the Center. I want you to imagine Tom, Brooke, Susie, Nancy, Lorna, Fairlight, and myself asking for peace, rest, no pain, no worries, and on and on the list goes out to your family!!!! We care about you so much it is hard to know how to express it sometimes!!! But don’t ever think you are not on our minds constantly. Just like God’s love is constant for your family. I encourage you to hold on to what you know is true about who God is. His character, His nature, His love, His perfect will, and on and on that list goes!!! Your family is a treasure to anyone who knows you.

   May His Grace and Mercy surround you this day.

   Joan

7. Linda Kochendarfer Says:
   July 18th, 2007 at 1:10 pm e

   Dawn,
   Rich and I are leaving for Florida on Friday but we want you to know that you, Paul, Paul Burton and Katy will be in our prayers even as we travel. We’ll do our best to keep abreast of things through the blog.
   Love,
   Rich and Linda K.

We Stand

Breathing problems began early in the afternoon yesterday for Katy and her pain levels were too high to manage at home. Her pain is so great that it messes up her breathing pattern. It is all too complicated to go into detail and I don’t want to misinform anyone. The result is Acute respiratory alkalosis and can be found by a google search. Paul and I have had some pretty straightforward talks with some of her doctors today about her care in the future. Paul and I think it is vitally important to stand up for Katy and speak for her when she is down and can’t speak for herself. Paul stayed at the hospital tonight in order to speak to the doctors tomorrow as they make rounds starting at five in the morning. There is more that can be done for her, and we will, by the grace of God, get it done.

I discovered that the machine used in helping Katy breathe is called a BiPap machine and is used by some people in their homes for sleep apnea. Whenever the machine senses Katy’s breathing patterns are not right, it pushes a small rush of air into her nose and mouth and helps to fill her lungs. I’ve asked a few questions today about getting one through home health care and bringing Katy home. The breathing problems will subside when her abdominal pain subsides. Her abdominal pain will subside when it is better managed. The last doctor to make his rounds today said something I have been saying for months. He mentioned having someone really look at Katy’s cells to see if there is an autoimmune disease or abnormal cell formations causing some of these symptoms. I don’t know where that will all lead but he did say he was going to talk to Katy’s hematologist in the morning.

There were a few tense moments last night to say the least, but the peace that passes all understanding was with each one of us and especially with Katy. Her doctor commented to me today that after all she had been through, Katy tried her best to thank people as they helped her. That kind of graciousness is heartwarming to those of us who witnessed it. Lord, please hide Katy tonight in the cleft of the rock and cover her there with your hand.

Comments:

1. Patricia Says:
   July 16th, 2007 at 10:16 pm e

   Amen.

   Patricia

2. Jennifer S. :-) Says:
   July 16th, 2007 at 10:42 pm e

   Katy,
   I’m praying for you!! We prayed for you tonight in our family worship. I hope that things take a turn for the better soon. You are in our thoughts and the very capable hands of our loving Father.
   Love and prayers,
   Jen

3. Lillian Oliveira Says:
   July 16th, 2007 at 11:28 pm e

   I put Katy on our church prayer chain today. I’m wondering if the new doctor is in on this? Is he not at the hospital? I think others are wondering,too.. Praying, Aunt Lil

4. Jennifer Wellington Says:
   July 17th, 2007 at 9:20 am e

   We will continue to pray for you, Katy.

5. Barbara Walker Says:
   July 17th, 2007 at 10:39 am e

   Dear Katy and Family,

   We continue in our stand with the Lord for you! Yes, you are a precious and gracious young woman. Everyone who makes contact with you cannot help but see the Lord Himself in you! Hang tough! You know God is in complete control of this situation!

   Love in Christ,

   Barbara

6. Heather Kirkwood Says:
   July 17th, 2007 at 12:07 pm e

   Katy,
   I’m so sorry to hear you’ve had such a tough couple of days! I’ve been away. I was so busy before I left that I didn’t even get to tell much of the HPS world that I’d be out of pocket for four days. I’m so sorry so much has happened in the last few days and I haven’t had a chance to post a little something and let you know I’d be praying for you - but you know I do anyway!

   More later - I’m digging out at work, but had to check up on you while I was eating lunch.

7. Marlin (Mick) Says:
   July 17th, 2007 at 12:55 pm e

   I haven’t made many comments here but my prayers are with you always.

   Mick

8. Karen Tillman Says:
   July 17th, 2007 at 2:24 pm e

   Hey Dawn, Sry it has taken me so long to post, but I’ve had a few upheavels myself lately. It seems that everyone on the HPS list serv is having quite a few problems as of late. Anyway, please give Katy our love, and let her know we are all in this together and praying for her. I only wish they would be able to manage her care more efficiently, but unfortunately all this takes time, some more than others. God give all of you peace, comfort, and strength.
   Love always
   Karen Tillman